Researcher map and data request log

Researchers use registries they know. This page goes with Chapter 15. Search by condition, then by mechanism and by a neighboring disease that shares it; place each researcher on the map; and keep a log of every data request, because each one teaches you something about your data. Every request moves through review by a data access committee, IRB approval, and a data use agreement; the Data Sharing in a Box playbook has sample language for each step, and review times range with the request and the committee.

	Entry
Registry
Condition
Completed by (role)
Date
Version

Where we searched

Date	Search (condition, mechanism, neighboring disease)	Terms	Researchers found

Researcher map

Researcher and institution	Kind (basic, clinical, translational, regulatory)	Works on	What they might want from the registry	What lived experience we could offer	Contacted?

Data request log

Date	Who asked (role and institution)	What for	Data access committee decision (date)	IRB approval on file	Data use agreement signed (date)	What we shared	What the request taught us about our data	Participants told of any publication?